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Protecting health data through trusted governance

Responsible access to health data

All use of iCARE data is governed through established approval processes. Researchers must demonstrate that their project:

• Has a clear research purpose
• Provides potential public benefit
• Uses only the data required
• Meets legal and ethical requirements
• Has appropriate governance approvals

Researchers access de-identified data within the secure iCARE environment rather than receiving copies of datasets.

The Five Safes framework

iCARE follows the Five Safes framework, a recognised approach for managing access to sensitive health information.

Safe people

Access is restricted to approved users who have:

• Completed required training
• Received appropriate approvals
• Agreed to data use responsibilities

Safe projects

Projects must demonstrate:

• A clear research purpose
• Appropriate approvals
• Responsible use of health data
• Potential benefit to patients and healthcare

Safe settings

Data is accessed within a secure technical environment with:

• Controlled user access
• Secure infrastructure
• Monitoring and auditing processes

Safe data

Data is protected through:

• De-identification
• Data minimisation
• Controlled access to approved datasets

Safe outputs

Research outputs are checked before release to ensure they:

• Do not risk identifying individuals
• Follow confidentiality requirements
• Meet governance standards